Newborn and Infant Nursing Reviews
Volume 10, Issue 1 , Pages 5-7 , March 2010

Engaging Families in Neonatal Research

  • Brenda Baker, MN, RNc, CNS

      Affiliations

    • VCU School of Nursing, Richmond, VA
    • ,
  • Jacqueline M. McGrath, PhD, RN, FNAP, FAAN

      Affiliations

    • Virginia Commonwealth University, School of Nursing, Richmond, VA
    • Corresponding Author InformationAddress correspondence to Jacqueline McGrath, PhD, RN, NNP, FNAP, School of Nursing Box 980567, Virginia Commonwealth University, Richmond, VA 23298.

References 

  1. Thomas KA. When neonatal ICU infants participate in research: special protections for special subjects. Crit Care Nurs Clin North Am. 2009;21:277–281
  2. Carter B. Tick box for child? The ethical positioning of children as vulnerable, researchers as barbarians and reviewers as overly cautious. Int J Nurs Stud. 2009;46:858–864
  3. Jones L, Woodhouse D, Rowe J. Effective nurse parent communication: a study of parents' perceptions in the NICU environment. Patient Educ Couns. 2009;69:206–212
  4. Boss RD, Hutton N, Donohue PK, Arnold RM. Neonatologist training to guide family decision making for critically ill infants. Arch Pediatr Adolesc Med. 2009;163:783–788
  5. Freer Y, McIntosh N, Teunisse S, Anand KJS, Boyle EM. More information, less understanding: a randomized study on consent issues in neonatal research. Pediatrics. 2009;123:1301–1305
  6. Hoehn KS, Nathan A, White LE, et al. Parental perception of time and decision-making in neonatal research. J Perinatol. 2009;29:508–511
  7. Tait AR, Voepel-Lewis T, Malviya S. Factors that influence parents' assessments of the risks and benefits of research involving their children. Pediatrics. 2004;113:727–732
  8. Ward FR. Chaos, vulnerability and control: parental beliefs about neonatal clinical trials. J Perinatol. 2008;29:156–162
  9. Franck LS. Research with newborn participants. J Perinat Neonatal Nurs. 2005;19:77–186
  10. Stenson BJ, Becher JC, McIntosh N. Neonatal research: the parental perspective. Arch Dis Child Fetal Neonatal Ed. 2004;89:F321–F324

PII: S1527-3369(09)00172-X

doi: 10.1053/j.nainr.2009.12.004

Newborn and Infant Nursing Reviews
Volume 10, Issue 1 , Pages 5-7 , March 2010

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