Newborn and Infant Nursing Reviews
Volume 6, Issue 3 , Pages 175-177 , September 2006

Families and the Chronicity of Diagnosis with Congenital Heart Defects

  • Jacqueline M. McGrath, PhD, RN, NNP, FNAP

      Affiliations

    • Corresponding Author InformationAddress correspondences to Jacqueline M. McGrath, PhD, RN, NNP, FNAP, Virginia Commonwealth University, School of Nursing, Box 980567, Richmond, VA 23298.
  • ,
  • Amy Kolwaite, RN, MS, MPH, PNP

References 

  1. Moons P, De Geest S, Budts W. Comprehensive care for adults with congenital hart disease: expanding roles for nurses. Eur J Cardiovasc Nurs. 2002;23–28
  2. Gatzoulis MA. Adults with congenital heart disease: multiple needs of a fast growing cardiac patient group. Hell J Cardiol. 2003;44:9–13
  3. American Heart Association . Congenital Cardiovascular Defects. Retrieved August 15, 2005, from http://www.americanheart.org/presenter.html2005;
  4. Moons P, De Volder E, Budts W, et al. What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured parent education. Heart. 2001;86:74–80
  5. Chessa M, De Rosa G, Pardeo M, et al. What do parents know about the malformations afflicting the hearts of their children?. Cardiol Young. 2005;15:125–129
  6. Veldtman GR, Matley SL, Kendall L, et al. Illness understanding in children and adolescents with heart disease. Heart. 2000;84:395–397
  7. Beeri M, Haramati Z, Rein A, Nir A. Parental knowledge and views of pediatric congenital heart disease. Isr Med Assoc J. 2001;3:194–197
  8. Pye S, Green A. Parent education after newborn congenital heart surgery. Adv Neonatal Care. 2003;3:147–156
  9. Cheuk DL, Wong SM, Choi YP, Chau AK, Cheung YF. Parents' understanding of their child's congenital heart disease. Heart. 2004;90:435–439
  10. Van Deyk K, Moons P, Gewillig M, Budts W. Educational and behavioral issues in transitioning from pediatric cardiology to adult-centered health care. Nurs Clin North Am. 2004;755–768

PII: S1527-3369(06)00073-0

doi: 10.1053/j.nainr.2006.06.005

Newborn and Infant Nursing Reviews
Volume 6, Issue 3 , Pages 175-177 , September 2006